Memorandum from The Judith Trust
Our evidence to the Joint Committee on Human
Rights concerns Article 8 of the European Convention on Human
Rights, the right to respect to private life, with specific reference
to the European Court of Human Rights' interpretation of this
article as including a right to participate in the life of one's
local community. We would also wish to reference the Convention
on the Rights of Persons with Disabilities that states that disabled
persons have equal access to human rightstheir rights are
in no sense diminished because of any disability.
The Judith Trust is a small organisation that
works to improve the quality of life for people with both a learning
disability and mental health needs. The Trust supports multi-disciplinary,
preventative and innovative approaches. It pays particular attention
to the needs of women and Jewish people.
In October 2003 the Trust commissioned research
that looked at the importance of being Jewish to people with learning
disabilities and their families. This research found that being
Jewish was very important to this group and that they derived
a great deal of satisfaction from being able to participate fully
in their community. However, the research also found that this
was often difficultbarriers were placed in the way and
the promotion of inclusion was usually not a high priority.
The Judith Trust heard stories from parents
whose children had been refused a bar- (or a bat-) mitzvah within
their own congregation: an important life event for Jewish people.
This refusal is often borne from ignorance about learning disability,
as well as a lack of accessible learning materials that would
help individuals reach the appropriate and required levels of
understanding. Partly it may be based on interpretation of biblical
statements that may be read differently and in more enabling ways
and there are examples of good inclusive practice by various synagogues.
The research also found a great deal of stigma
attached to having a child with a learning disability within the
Jewish community, which led parents to feel isolated and ashamed
of and for their children, and adults with learning disabilities
to become alienated from the community. People felt there was
a general lack of tolerance from within the community.
The main barriers to people accessing this very
important right to participate fully in their community range
from a `benign' lack of understand of people with learning disabilities
to more worrying abuse of rights such as intolerance and discrimination.
It is compounded further by a lack of accessible resources.
The Judith Trust would like to see more effort
made the UK government to ensure that people with a learning disability
are able to participate in the spiritual life of their chosen
community. This would involve a greater effort to stamp out intolerance
and discrimination of people with learning disability, with particular
attention paid to communities that might be more prone to discrimination
for cultural reasons.
The Trust expects the UK government to make
greater efforts to ensure that religious organisations are fully
informed of the priority it places on equality for all. The Trust
also draws attention to the fact that power relations within faith
communities are also often unequal with girls and women less valued
and not able to participate fully and equally with men in their
communities. This, too, should not be left unquestioned in the
noble attempt to achieve a society free of such inequality or
abuse of human rights.
Such efforts on the part of government should
form an ordinary part of the work of the new Commission for Equality
and Human Rights which must seek to formulate policies to promote
equality across the 6 strands. The Trust is concerned that religious
faiths are encouraged to think through the meaning of equality
within their communities as well as working to establish their
own status vis a vis the other five strands and the wider society
at large.
May 2007
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