Correspondence between the Chairman
of the Committee and the Department of Health in respect of Allergies
Services and the NHS
To Ann Keen MP, Parliamentary Under-Secretary
of State for Health, Department of Health
The Health Committee's Report on Allergy in 2004
made recommendations for improvements in allergy services. I would
be grateful if the Department could let me know what progress
has been made in implementing recommendations.
There is still concern that the Department of Health
is not taking allergy seriously. We have been told that there
is a lot of poor practice going on especially in primary care
services. The problem is large; it has been suggested that about
13 million people could to be managed either by self- care or
in primary care, but only if primary care geared up sufficiently.
In addition, we have been informed that about 7 million might
need to see a specialist.
There are two particular areas of concern, namely
the number of
allergy specialists; and
allergy centres.
Allergy specialists
It is clear that in order to enhance services at
all levels ie primary as well as secondary care, more specialists
are needed (ie allergists, not consultants in other disciplines).
Following our report the Department undertook a review which proposed
a number of improvements, but many of these require a sufficient
body of expertise in allergy (trained specialist allergists) to
deliver them.
In view of this, we would like to know why only 5
additional allergy trainee posts were created, meaning that there
are only 12 in England in total, each on a 5 year training programme.
Is this correct and how does the figure compare with 2004? Does
the Department believe that this number is enough to grow the
speciality.
How many trained allergists (adult and paediatric)
are there and how does this compare with 2004?
We have been told that 5 extra immunology trainees
have also been appointed. Does the Department realise that although
they may contribute to allergy, they have only a partial training
in allergy and their primary role is to deliver care in other
areas.
Allergy centres
Why has only one regional allergy centre for the
whole of England been established after 4 years. Do you agree
that one per region (population approx 5-7 million) should be
the minimum? Does the Department intend to implement this Health
Committee's recommendation? Are local commissioners being told
that allergy should be a priority? What is the plan of action
for other areas of England?
The new regional centre which has been established
is to be a pilot for models of care. This means it needs to be
designed and funded properly and appropriately staffed. It also
needs consultants in adult and paediatric allergy to lead the
service. Could the department let the Committee know where are
they coming from and when.
30 October 2008
To Kevin Barron MP, Chairman, Health Select Committee
Thank you for your letter of 30th October 2008, querying
what progress has been made to improve allergy services since
the publication of the Health Committee's Report on Allergy in
2004. I would like to reassure you that the Department of Health
is committed to improving allergy services. It may therefore help
if I outline the key work underway to improve allergy services.
As you will be aware, following the Health Committee's
report the Department of Health undertook a review of the available
data, including the epidemiology of allergic conditions, the demand
for and provision of services and the effectiveness of relevant
interventions. This document was intended to help the NHS to consider
and anticipate changes in demand for allergy services at a local
level and allocate resources accordingly. This document also helped
inform the House of Lords Inquiry into allergy.
In order for healthcare professionals to provide
effective allergy services they need access to appropriate training
and guidance. The Department has undertaken a range of work to
provide this.
Firstly, we submitted requests to NICE for the following
pieces of work:
i. Health Technology Appraisals:
- To appraise the clinical and
cost effectiveness of sublingual and subcutaneous allergen immunotherapy
for moderate to severe seasonal allergic rhinitis (hay fever).
- To appraise the clinical and cost effectiveness
of Pharmalagen (ALK-Abello) for subcutaneous immunotherapy for
moderate and severe insect (bee and wasp) venom anaphylaxis.
ii. Short Clinical Guidelines on:
- What is the most effective
method of diagnosing anaphylaxis of any cause in adults and children.
- What is the most effective method of follow-up
treatment of a patient following an anaphylactic reaction.
These are being discussed at NICE's Topic Selection
Committees and we are awaiting feedback about their decision.
I would like to reassure you that these proposals will be given
very serious consideration, should they be given the Topic Selection
Committee approval for progression.
Also last month, Skills for Health published the
National Occupational Standards (NOS) for allergy at the British
Society for Allergy and Clinical Immunology conference. The NOS
Will help to improve standards of care for patients, through providing
access to on-line training for all healthcare professionals involved
in providing care for patients with allergies. They will also
help to ensure that these patients are given timely and appropriate
care. The NOS are in the final stages of preparation and should
be on the Skills for Health website in the near future.
The Royal College of Paediatrics and Child Health
have provided the Department of Health with their report from
the scoping work they undertook regarding the development of a
care pathway for children with allergic symptoms. We have asked
them to take forward the next stage of this work to develop and
publish the actual care pathway. This will be an invaluable tool
for clinicians in managing children with possible and actual allergic
reactions. We hope that this work will be completed next year.
The Council on Toxicity has also commenced discussion
to discuss its advice on peanut avoidance and consider whether
this should be amended in light of new evidence. The minutes from
their meetings are available at http://cot.food.gov.uk/cotmtgs/cotmeets/.
We anticipate that the Council will provide its advice to the
Department of Health by the end of the year.
The House of Lords report of its inquiry on allergies
also recommended that a lead Strategic Health Authority should
be established. Following an open tender exercise in May this
year, the North West SHA was given the role of leading on allergy
services, with a remit of championing improvements in allergy
services across the NHS and specific responsibility for working
with stakeholders to develop a pilot allergy centre.
To turn to your queries regarding allergy workforce,
as you correctly state, we have increased training posts by an
additional 5 allergy and 5 immunology posts. As you will be aware,
workforce planning in the NHS is managed and led at a local level
by the Strategic Health Authorities (SHAs) taking into account
the national policy direction. Therefore, it is their responsibility
to create posts for allergists where they feel the speciality
is needed. According to data from the General Medicine Group of
consultants in the NHS Information Centre workforce census, there
were 18 allergy consultants (FTE 16) as at September 30 2007.
In 2004, there were 26 allergy consultants (FTE 18). The Paediatric
consultants are not divided into sub-groups in the census so it
is not possible to give the figures for those working with allergies
in children.
As a result of the NHS Next Stage Review, the Department
is looking at how to ensure that workforce planning is aligned
with the new models of care. Given that the majority of allergy
patients are seen and managed in primary care, the focus of education
and training should be on GPs. The NOS developed by Skills for
Health, together with the development of care pathways and clinical
guidance, will help enhance the knowledge and expertise of primary
care staff caring for patients with allergies.
You also query what work is being taken forward to
establish allergy centres. The Government recognises that people
with complex allergies need and deserve specialist advice and
support to help them to maximise their health and well-being and
investment in the NHS will help deliver service improvements,
including allergy services, across the board. However, the responsibility
for commissioning of allergy services rests with individual Primary
Care Trusts (PCTs) and it is for them to ensure that they are
commissioning services sufficient to meet local need.
You will be aware that PCTs have to set priorities
for investment and reform across a range of service areas including
allergy. We have recognised that allergy services have not always
been given the focus that they require, which is why we have appointed
NHS North West to lead improvements in allergy services. The intention
is that NHS North West will explore and develop models that can
be shared with the rest of England that will deliver improved
patient care for people with allergic diseases.
I am pleased to report that considerable progress
is already being made towards the delivery of a pilot allergy
centre. With the support of PCTs in the region, NHS North West
have asked the North West Specialised Commissioning Group (NWSCG),
through the North West Specialised Commissioning Team (NWSCT),
to co-ordinate the work programme that will be required to commission
this service. The NWSCG had already established, in January 2008,
a Task and Finish Group (TFG) to review specialised allergy services
in the region. The TFG, with a membership drawn from clinicians,
service managers, commissioners, public health professionals and
third sector organisations, has developed proposals for a network
based approach to allergy care in the North West for adults and
children and young people. The proposal is to create linked paediatric
and adult services, delivered from a number of locations across
the region, co-ordinated by an allergist lead. The proposal builds
upon previous investment, in addition to the costs of service
provision through contract prices, by the NWSCG in allergy services.
It is anticipated that the allergy network arrangements will be
in place for April 2009. It is our view that if a region such
as the North West can deliver on this agenda and lead by example
in establishing an integrated service other areas of England will
follow.
I hope that this has helped reassure you that the
Government is still actively committed to improving the lives
of patients with allergies and the services we provide for those
living with the condition.
15 December 2008