APPENDIX
Examples of quotations from day centre users
in as-yet unpublished group discussion research illustrate patients'
perceptions of benefits, as follows:
I really feel I would have deteriorated more
quickly for a lot of reasons. It's getting me out, meeting different
people, and seeing how other patients cope whereas I perhaps would
have thought I was more alone and felt more sorry for myself,
sitting there dwelling on things. And . . . the thing that has
struck me most of all is the time that people have got to give
you , because in the hospital they are so busy they can't give
you any time at all. And here, the major thing is that people
have the time to sit and talk to individuals, listen to individuals,
and also, I must say that obviously most of the people that work
in the hospital are themselves relatively fit and they don't seem
to understand how fragile . . . how fragile a person can be. And
here I think it's appreciated by all the staff just how frail
we are. And I have enjoyed very much doing the arts and crafts
I didn't know and had never found time to do. And all round it's
a great benefit and I don't know where I would have been without
it.
I really enjoy being with the other patients.
It's like being a member of an exclusive club. Nobody wants to
be members but there is this bonding between patients, which I
don't think anybody else can experience.
Sometimes you used to feel like you don't
want to go on you know, and [that] there is nothing here in this
world for you. [You] begin to see people differently because you
feel that people are cruel, you know, but since I've been coming
to St Christopher's group, I realise there are still good people.
I sit indoors, I do a little bit of walking perhaps.
I do like gardening and I can't do my garden
at home but I can do quite a bit here.
I've found that the group is beneficial because
if you've got a problem you can share it with someone else. Like
if it's your family, well it's different if it's family, but when
you're among friends that's got the same as you . . .
I do enjoy coming even more now because I
actually look forward to it, to come here, where before when I
was poorly I didn't, I used to say oh I'll stay and lay in bed
all day.
What I enjoy, here now we're doing six weeks
of drama which I've never done before and I didn't know that you
have so much laughs. I never know'd I enjoy it so much.
Lovely lunches again that we have. I wasn't
eating at all; I did lose my appetite after the chemo and since
I been coming here . . . I does only one days a week . . . I am
able to eat something. Aren't that wonderful?
I rested all day yesterday so I could come
today.
February 2004
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