Memorandum submitted by Mr David Hoe-Richardson,
Hull and East Riding Prostate Cancer Self Help Group
My name is David Hoe-Richardson and I represent
the Hull and East Riding Prostate Cancer Self Help Group: I would
like to address the Committee on the subject of Prostate Cancer.
For far too long, men's health in general and
men's cancers in particular have had a very low priority. The
life expectancy of a male born in the last decade is five years
less than for a woman. Each year over 1½ as many men as women
die age between 15-64. This excess number of male deaths is equivalent
to one jumbo jet crashing every week and killing everyone on board
(Men's Health Forum). Men are much less likely to consult a health
professional than women. 89 per cent of men have no knowledge
that they possess a prostate gland, where it is situated or what
function it performs.
When I was diagnosed with the disease some six
years ago the only warning I had was blood in my urine. Because
I worked within the Health Service I realised that I should see
my GP. The result, upon eventual diagnosis some six months later,
was metastasised prostate cancer. I was given no offers of information
or help to learn more about what this meant. I immediately set
out to research the disease and its possible treatments and became
very knowledgeable about it. My GP even admitted I knew more than
he did.
However, in comparison to the few men like myself
who have thoroughly researched the subject there are the vast
majority of men who are totally ignorant.
This Government, as also have previous Governments,
are refusing to accept that a screening programme will be useful.
I wrote to James Cran, my MP, about this and received a standard
response form Yvette Cooper. I would like to quote from that reply.
Whether or not there is an early national screening
programme I would strongly suggest there is an urgent need for
an educational and awareness campaign to at least make men aware
of the possibility of them developing prostate cancer and to,
at the very least, go to their GP for a check-up if they experience
any symptoms. Unfortunately, many will develop the disease without
experiencing any symptoms at all.
The reason I started and continue to run the
self-help group in Hull, as others are also doing in other parts
of the country, was to provide information and support to local
men and to campaign to raise awareness and encourage men to go
to their GPs.
However, it should not be the sole responsibility
of men who are, in many cases, suffering from the disease themselves
to carry out this work. The Government should be committing resources
to it.
My local health promotion department initially
produced some leaflets to raise awareness of testicular cancer
and when I approached them they agreed to do the same for prostate
cancer.
The local Macmillan nurses have also been very
helpful. These initiatives could be rolled out across the country
at very little expense and would be a welcome start in helping
to raise awareness. Another initiative could be for the PCGs and
PCTs to take the issue on board and give equal prominence to men's
health as they do to that of women.
HAZs and Healthy Living Centres could also play
a part. I have also used the local press and local radio to highlight
the issue and again this could be done nationally.
I was delighted to see the campaign run by the
Daily Mail which raised the profile and quickly raised £1½
million from its readers for research.
I accept that in the past few months the Government
is at long last starting to give the subject more prominence.
However, the amounts being spent on research are still woefully
inadequate. For a disease which kills at present as many men per
year as breast cancer does women, it should have at the very least
comparable research funding of £5 million per year.
Two week waitProstate Cancer is
the last one to have this introduced by the end of this year.
If the Government is genuine in its desire to increase the emphasis
on Pca it should have been introduced at the same time as breast
cancer. But it is no use having an initial consultation in two
weeks for any cancer and then having to wait many months for tests
and treatment. There should be the resources available immediately
for relevant X-rays and scans to be carried out and appropriate
treatment put in place. As I said, I waited six months before
tests confirmed my cancer. I will never know whether, in those
six months, the cancer spread to my bones or whether it had already
done so when I first saw my GP. There are many, many cases where
earlier diagnoses would have resulted in a cure and we owe it
to everyone that as many as possible can be cured of this disease.
21 June 2000
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